Thursday, October 24, 2013

Hello from Recovery...

Today was Jacob's small intestine biopsy to test for Celiac disease.  Obviously this has been long-awaited since that day at Disney where we got the news, and I guess you could say that today was a bit bittersweet.  You never want your kid to have to be put under, or be poked and prodded, but at the same time, you want your kid to be healthy.  This was simply the next step on that quest.  The bad news is that he couldn't eat all morning, or drink after 8:30am.  It's now almost 2:30 as I type and he's still asleep from the procedure.  I remembered that the last time he got anesthesia he took a while to wake up, and it looks like that's the case again.  So here we wait...

Ready to go!

The procedure went fine.  We won't get the results until early next week, but all indications are still that he's got Celiac disease.  She took a bunch of biopsies and saw a few spots that seemed to be a little suspect just from looking at them, but we'll know for sure when the pathology comes back. 

In the meantime, we're free to start a gluten-free diet...or not.  This weekend is a little complicated for a few reasons.  We're going to visit my family for our annual family Oktoberfest.  There will certainly be a lot of gluten-filled food there.  In addition, Jacob just got the invite for a birthday party on Saturday for one of his new classmates.  The party, of course, is at Chuck E. Cheese.  He won't be able to eat the pizza or any cake.  While he says now that it won't bother him, I'm not convinced.  I actually wanted to be in N.T. for another event earlier than we'd get there if he went to the party, so I suggested we go and play games for a bit, say happy birthday, and leave before the food became an issue.  In the future I can always try to bake up some cupcakes or take some gluten-free pizza, but the short notice and the busy rest of the weekend make that a challenge this time around.  And, given the fact that I'd like to leave town before the end of the party, it makes sense that we just skip that part. 

Craig originally said, "Oh, we can just let him eat normally this weekend," but I'm hesitant to do that.  First, we've been waiting so long to switch his diet and are desperate to see some behavior change from it that it seems silly to put it off.  Second, there's always going to be something that we'd like him to be able to eat normally for.  Next week is Halloween, and beyond that there will be other birthday parties, thanksgiving, or whatever else.  So we might as well face the music and start this new chapter.  It's not going to be easy, but it's inevitable.  And God knows we need whatever behavior change the new diet will bring.  As soon as possible.  We know it's going to be a while before anything happens, but no time like the present, right? 

So, Jacob took a while to wake up but he's up now.  He's had a popsicle and is chatting a bit, but he's still pretty low key.  I need to go get a little more work done (I am low on time off so I need to sneak in as much as I can just in case we have anything else come up), but Craig will take him home and get him settled in. 

We're obviously grateful that he came through this okay, but it's going to be a tough transition.  We're eager to get things moving, though, because we need our lives to get back to normal...or at least a little more normal normal.  Now if I could just find gluten-free recipes for my picky eaters, that would be great...

No comments: